Comments on: Should I just stick a sign on her head and be done with it?

By: Molly

Molly — Wed, 28 Nov 2012 22:01:20 +0000

I know exactly how you feel, though I doubt that will be much consolation. It’s a very tricky time (or at least that’s the way I found it) but it does pass, I promise you. You’ll probably find physio really helps your daughter and it’s great that you’re on the list and able to get it so early. F was two by the time she started hers properly and the wait was quite frustrating – for both of us. Have you contacted the Hypermobility Syndrome Association? They have some fantastic advice and support for parents. It’s still a relatively unknown condition and you’ll have to grit your teeth and ignore the ignorant comments people make about it. Many simply don’t understand!

By: Lorainne

Lorainne — Wed, 28 Nov 2012 18:39:48 +0000

Hi Molly – Your little girl is beautiful. My 19 month old is not walking yet either and loads of people ask me about it. .One lady suggested it was my fault for carrying her all the time!!! She has been checked by the doctor and all her blood tests are clear, her muscle tone is good and she is fine with all her other milestones and saying a lot of words. She is going to start physiotherapy soon as they said she is hypermobile but didn’t really explain what that is/means. She doesn’t like to stand up at all and ‘walks’ on her knees or crawls.

By: Late walking and hypermobility

Late walking and hypermobility — Sun, 20 May 2012 12:29:32 +0000

[...] about my non-toddling toddler’s struggle with walking and hypermobility, the frustrations and questioning looks, the worry and negativity… I wanted to put something positive [...]

By: Best of the UK Parent Blogs: Ten at Ten (57) | Tots 100

Best of the UK Parent Blogs: Ten at Ten (57) | Tots 100 — Fri, 11 May 2012 09:07:05 +0000

[...] Mothers Always Right is coming to terms with her daughter having a diagnosis of Hypermobility Syndro… and she’s angry. Having brought up a child who wears her ‘difference’ slap bang in the middle of her face, with all the resulting questions, I’m fully behind this jolly good rant. [...]

By: Molly

Molly — Fri, 11 May 2012 05:07:39 +0000

Nice point!

By: Margaret Weaver

Margaret Weaver — Thu, 10 May 2012 20:30:13 +0000

Trample all over it does it for me! (your words) X

By: Ghislaine Forbes

Ghislaine Forbes — Wed, 09 May 2012 17:23:57 +0000

I have just the comment for those who make pitying comments and don’t see my gorgeous girl, but I don’t think it could be printed. Just in case you can’t work it out it begins with f and ends with off…..Don’t let NLM see this as he already knows his ma in law has a “toilet mouth”, how quaint! love ma x

By: liveotherwise

liveotherwise — Wed, 09 May 2012 09:36:30 +0000

Ppl aren’t good about anything different. My son didn’t speak til he was three, we used signs. That was different, but most of the time it doesn’t show. I’m half deaf, that doesn’t show. We home educate, that mostly doesn’t show. But let anyone get hold of any part of it and I get the third degree, and sometimes I do just want to tell ppl where to go. Hang in there, your daughter is beautiful and you love her, that’s what counts.

By: Maria @ Feisty Tapas

Maria @ Feisty Tapas — Wed, 09 May 2012 09:18:53 +0000

I am feeling exactly the same as you but for the opposite reason, where your child can’t walk but talks beautifully, mine at 22 months has been walking since the week after she turned one but I get a lot of people telling me “She doesn’t say much, does she?”. I get so angry, she flipping understands two languages at 22 months, she says a few words, she may only say the English or the Spanish word but knows the meaning of both, and you can see her taking in all in with great determination for when she is ready to blurt it all out. She also already has her mother’s stubbornness so she will do just fine. I just tell everyone she is bilingual and bilingual kids can take longer to talk. But I feel my blood boiling sometimes.

As Adele wisely says above, it’s people who don’t know you or her well, passers-by, people who are not important in your life. Those who matter will take time to observe how brilliant she is in every respect.

I went through the badge stage already when I wasn’t able to breastfeed, I consider sticking something from my changing bag saying: “Mummy wasn’t able to produce milk but she tried, she really tried, now she just wants me to be healthy!.

I may do an “I understand 2 languages already, how about you?”.

By: Molly

Molly — Wed, 09 May 2012 09:18:12 +0000

This makes me so sad. Thank you so much for sharing. And thank you for the comments about my daughter – although she’s not so much of a ray of light when she’s trying to delay bath and bedtime! x